Sickle Cell Trait and Renal Medullary Carcinoma. Medical Grand Rounds at ChristianaCare Health System, Inc.

Lack of Documentation of Sickle Cell Trait and Alpha Thalassemia Trait within the Electronic Health Record: An Issue of Health Equity and Data Integrity. APHL Newborn Screening Symposium.

Using Error-corrected Sequencing Strategies as a Molecular Diagnostic Platform for Pediatric Cancers and Rare Diseases. Thomas Jefferson University & Nemours Research Lecture Series.

Research Update on Sickle Cell Disease Program. DE-CTR ACCEL- Junior Investigator Network (JIN).

Nemours Sickle Cell Center of Biomedical Excellence (SCD COBRE)

A deep learning system for sickle cell retinopathy detection using retinal OCT images from children with sickle cell disease. 2022 Annual Conference of Association for Research in Vision and Ophthalmology.

Comparison of sickle cell retinopathy progression using funduscopy and SD-OCT. American Association for Pediatric Opthalmology Ann Strabismus 2022 (AAPOS).

Sickle Cell Center of biomedical Research Excellence. Nemours Town Hall Meeting.

Sickle Cell Center of biomedical Research Excellence. Grand Rounds Lecture.

Hildenbrand, A.K., Bear, B., Schultz, C., Alderfer, M.A., & Crosby, L.E. (2022, October). Using crowdsourcing to examine implementation of sickle cell disease care guidelines across healthcare settings. Nemours Delaware Valley Research Week.

Hildenbrand, A.K., Bear, B., Alderfer, M.A., Schultz, C.L., & Crosby, L.E. (2022, October). Healthcare provider perspectives on barriers to use of novel disease-modifying therapies among individuals with sickle cell disease, 50th Annual SCDA of ANC.

Hildenbrand, A.K., Shook, L.M., Rebitski, J., Johnson, Y., Mara, C., Quinn, C.T., Hackworth, R., Brinkman, W.B., Badawy, S.M., Thompson, A.A., Raphael, J.L., Tubman, V., Smith-Whitley, K., Hartung, H., King, A.A., Creary, S.E., Reader, S.K., Bashin, N., Rampersad, A., Sobota, A.E., Britto, M., Saving, K.L., Treadwell, M., & Crosby, L.E. (2022, October). Offering hydroxyurea to parents of young children with sickle cell anemia using shared decision making. 64th ASH Annual Meetin, New Orleans, Louisiana.

Hildenbrand, A.K., Eckrich, D., Lewis, A.M., Schultz, C.L., Alderfer, M.A., Forrest, C.B., Creary, S.E., Hulbert, M.L., Rao, S., Christakis, D.A., & Crosby, L.E. (2022, December). Hydroxyurea use among youth with sickle cell anemia across eight care centers in the United States, 64th ASH Annual Meetin, New Orleans, Louisiana.

Julie Kanter, MD; Kenneth Ataga, MD; Neha Bhasin, MD; Stephanie Guarino, MD, MSHP; Abdullah Kutlar, MD; Sophie Lanzkron, MD, MHS; Deepa Manwani, MD; Patrick McGann, MD; Sean Stowell, MD, PhD; Veneé Tubman, MD, MSSc; Irina Yermilov, MD, MPH, MS; Cynthia Campos, MPH; Michael S Broder, MD, MSHS. Expert Consensus on the Management of Infusion-Related Reactions (IRRs) Presenting With Pain in Patients Receiving Crizanlizumab, ASCAT-EHA-BSH Sickle Cell Disease Conference 2022, London, UK.

Stephanie Guarino, Focus on Sickle Cell Care, SiNERGe Symposium 2022 (HRSA Regional Sickle Cell Treatment Demonstration Project), Johns Hopkins University, Baltimore, MD.

Julie Kanter, MD; Kenneth Ataga, MD; Neha Bhasin, MD; Stephanie Guarino, MD, MSHP; Abdullah Kutlar, MD; Sophie Lanzkron, MD, MHS; Deepa Manwani, MD; Patrick McGann, MD; Sean Stowell, MD, PhD; Veneé Tubman, MD, MSSc; Irina Yermilov, MD, MPH, MS; Cynthia Campos, MPH; Michael S Broder, MD, MSHS. Expert Consensus on the Management of Infusion-Related Reactions (IRRs) Presenting With Pain in Patients Receiving Crizanlizumab, ASCAT-EHA-BSH Sickle Cell Disease Conference 2022, London, UK.

S.H. Guarino, M. Nelms, D. Williams, A.M. Brandow, P. Carroll, N. Bakshi, C.M. Campbell, D.S. Darbari, M. Kenney, W. Smith, J. Stinson, W. Zempsky, W. Huggins, D. Maiese, T. Hendershot, C. M. Hamilton. Expansion of Content in the PhenX toolkit for Sickle Cell Disease Pain, 64th ASH Annual Meeting, New Orleans, Louisiana.

S.H. Guarino, K. Subedi, O. Bakare, C. Wright, L. Pachter, M. C. Beach, and S. Lanzkron. Self-Efficacy and Stigma in Adults with Sickle Cell Disease - An IMPORT study analysis, 64th ASH Annual Meeting, New Orleans, Louisiana.

O. BAKARE, S. GUARINO, C. JENKINS, C. WRIGHT, K. SUBEDI, S. LANZKRON and L. PACHTER. Pain Attitudes in Adults with Sickle Cell Disease: A Mixed Methods Study, 64th ASH Annual Meeting, New Orleans, Louisiana.

Sophie Lanzkron, Jane Little, Daniel Semakula, Jessica Liang, Deepa Manwani, Julie Kanter, Stephanie Guarino, Payal Desai, Sana Saif Ur Rehman, Alice Cohen, Sara Stuart-Smith, Rachel Kesse-Adu, Sheila Azouji-Benjamin, Abbie Wickham, Kate Gardner. Similar Patient-Reported Quality Of Life In The US And UK In Patients With Sickle Cell: A Comparative GRNDaD/CoUSin Study, 64th ASH Annual Meeting, New Orleans, Louisiana.

Edward A. Kolb, Sickle Cell Comprehensive Center of Biomedical Research Excellence, Nemours Delaware Valley Research Week.

Setty BNY, Maddipati KR and Miller RE. Specialized Pro-resolving Mediator (SPM) Profile in Blood from Children with Sickle Cell Disease (SCD): Comparison with Age-, and Race- Matched Controls.

Corinna Schultz, Adolescent and Caregiver Experiences Discussing Sickle Cell Trait and Desires for Information: A Qualitative Exploration, Nemours Delaware Valley Research Week.

Elkus H, Grace RF, Buissereth T, Bennett CM, Rifkin-Zenenberg S, Gunn E, Lebensburger J, Angulo PA, Davini M, Rankin A, Nakano TA, Schultz CL, Pinchinat A, Hillier K, Badawy S. Standardizing the Diagnostic and Therapeutic Approach to Newly Diagnosed Children with ITP: Prospective Data from the ITP Consortium of North America (ICON) Quality Improvement Initiative, 64th ASH Annual Meetin, New Orleans, Louisiana.

O’Brien SH, Rodriguez V, Lew G, Newburger JW, Schultz CL, Orgel E, Derr K, Ranalli MA, Esbenshade AJ, Hochberg J, Kang HJ, Dinikina Y, Crevar CT, Donovan M, Dyme JL, Favatella NA, Michell LG, on behalf of the PREVAPIX-ALL infestigators. PREVAPIX-ALL: Phase 3 Study of the Safety and Efficacy of Apixaban for Thromboprophylaxis Versus Standard of Care in Newly Diagnosed Pediatric Acute Lymphoblastic Leukemia or Lymphoma, ISTH Congress, London, UK.

Schultz CL, Taggi Pinto A, Thomas M, Pitone M, Cellucci M, Miller RE, Smith-Whitley K, Alderfer MA. Pediatricians’ Disclosure and Documentation of Sickle Cell Trait Found on Newborn Screening: Barriers and Possible Implementation Strategies. 64th ASH Annual Meetin, New Orleans, Louisiana.

Erin L. Crowgey, PhD1, Erin Coyne, ANP1, Jeff Myers, BS1, Robin Miller, MD1. System’s Demonstration: A Learning Healthcare Application for Improving Sickle Cell Patient Outcomes using Guideline-based Care Practices, AMIA 2022 Annual Symposium, Washington, DC.

An examination of retinal OCT and brain MRI changes across sickle cell disease genotypes.

Ashuta Bhattarai, Chandra Kambhamettu, Jing Jin, DEnT: Detachable Encoder Transformer for Sickle-cell Retinopathy detection Using OCT, oral presentation at 26th International Conference on Medical Image Computing and Computer Assisted Interventions (MICCA), October 2023, Vancouver, Canada.

Jing Jin, Vinay Kandula, Lauren Amoo, Robin Miller, Chandra Kambhamettu, Edward Kolb “An examination of retinal OCT and brain MRI changes across sickle cell disease genotypes” oral presentation at annual meeting of The Association for Research in Vision and Ophthalmology in April 23-27, 2023, New Orleans, LA.

Ding, K., Bear, B., Sood, E., Alderfer, M.A., Crosby, L., & Hildenbrand, A.K. (2023, August). Disease-modifying Therapies for Sickle Cell Disease: Decisional Needs and Supports among Adolescents and Young Adults. Poster presented at the North East Regional IDeA Conference, Wilmington, DE.

Fatma Ceren Kirmizitas, David Rivas, Sudipta Mallick, Scott DePope, Alejandra Valencia, Sambeeta Das. Magnetic Microrobots for Clot Removal, Poster presented at the North East Regional IDeA Conference, Wilmington, DE.

Yanda Yang, Fatma Ceren Kirmizitas, Max Sokolich, Alejandra Valencia, David Rivas, M. Çağatay Karakan, Alice E. White, Andreas A. Malikopoulos, Sambeeta Das. Rolling Helical Microrobots for Cell Patterning. Poster presented at the North East Regional IDeA Conference, Wilmington, DE.

David Rivas, Sudipta Mallick, Max Sokolich, Sambeeta Das. Utilizing Microrobots for Micro-Manipulation, Localized Control, and Cell-Delivery Applications, Poster presented at the North East Regional IDeA Conference, Wilmington, DE.

Sambeeta Das, Microscale Robots for Cellular Patterning, Ezra Round Table Seminar, University of Delaware, 9/8/23.

Recker, K., Chmielewska, K., Patel, P., Silliman, J., Santana-Rojas, L., Hildenbrand, A.K., Palit, S., Wasserman, R.M. (2023, April). Piloting virtual reality respiratory biofeedback in an intensive outpatient pediatric pain rehabilitation program. Poster presentation at the US Association for the Study of Pain Annual Scientific Meeting, Durham, NC.

Patel, P., Recker, K., Silliman, J., Chmielewska, K., Santana-Rojas, L., Hildenbrand, A.K., Luu, K., Palit, S., & Wasserman, R. (2023, July). Piloting virtual reality respiratory biofeedback in an intensive outpatient pediatric pain rehabilitation program. Poster presentation at the ASPN Annual Conference, Miami, FL.

Hildenbrand, A.K., Improving Pain Management for Marginalized Communities, Invited presentation, Pediatric Grand Rounds, Nemours Children’s Hospital, Florida, virtual presentation, Grand Rounds, Nemours, FL, September 2023.

Hildenbrand, A.K., Improving Pain Management for Marginalized Communities, Invited presentation, Nursing Grand Rounds, Nemours Children’s Health, virtual presentation. Invited presentation, Nursing Grand Rounds, Nemours Children’s Health, virtual presentation. October 2023.

S. Mallick, M. Sokolich, D. Rivas, S Das, Targeted vibration-induced necrosis in liver cancer cells using paramagnetic microrobots, in 2023 International Conference on Manipulation, Automation and Robotics at Small Scale, Abu Dhabi, Oct 9-13, 2023.

Y. Yang, D. Rivas, M. Sokolich, S. Das, Closed loop control of bubble propelled microrobots, in 2023 International Conference on Manipulation, Automation and Robotics at Small Scale, Abu Dhabi, Oct 9-13, 2023

F.C. Kirmizitas, D. Rivas, S. Mallick, S. DePope, S. Das, Magnetic microrobots as a platform for cell clean up, in 2023 International Conference on Manipulation, Automation and Robotics at Small Scale, Abu Dhabi, Oct 9-13, 2023

Y. Yang , F.C. Kirmizitas, M. Sokolich , A. Valencia , D. Rivas , M.C. Karakan, A.E. White, A. Malikopoulos, S. Das, Rolling helical microrobots for cell patterning, in 2023 International Conference on Manipulation, Automation and Robotics at Small Scale, Abu Dhabi, Oct 9-13, 2023

S. Cherukumilli , F C. Kirmizitas, M. Sokolich , A. Valencia , M.C. Karakan, A.E. White, A. Malikopoulos , S. Das, Programmable modular acoustic microrobots, in 2023 International Conference on Manipulation, Automation and Robotics at Small Scale, Abu Dhabi, Oct 9-13, 2023

L.E. Beaver , Z.H. Shah, M. Sokolich, A.E. Yilmaz , Y. Yang, C. Belta , S. Das, Closed-loop control for a heterogeneous group of magnetically-actuated microrobots, in 2023 International Conference on Manipulation, Automation and Robotics at Small Scale, Abu Dhabi, Oct 9-13, 2023